The monotony of caregiving can be soul crushing. Have you ever been so steaming mad you thought your head might explode? Like the cartoon where steam would come out of the characters ears…was it Porky Pig? That is the visual I get when everything else in my head goes black with rage. Why do I…
It is a good thing to get your loved one’s help. It is the right thing to do. It is hard. I need to remind myself to be better prepared mentally for these days. After moving 1600 miles, the last few months have been “interrupted” by So Many Phone Calls. During business hours, of course….
I would like to know where to complain, but I don’t think any changes would come of it. Why is it my responsibility to fix some else’s mistake in a system I have no control over? So we moved states, and there are many health insurance PIA* issues with changing policies and getting new doctors…
It started with the Preschool teacher Mrs. K. “I think Jesse is having some troubles. He won’t participate in circle time, and he won’t talk to me when I ask him questions.” I’m thinking…This is Preschool. But I try to be as polite as possible and ask, “Did you ask him about electrical plugs, stoplights,…
Now I am in California, so please pipe in if you are from another part of the country where things might be different! Health insurance is a racket — a modern-day-mafia-racket. We pay through the nose for the privilege of having health insurance, but who the heck can afford to use it? And when you…
When you have state-run healthcare for your kids, in our experience, you get what I am going to call Transient Care. As in, people who work in the system are usually overworked and underpaid. Let’s face it: They are either very young, and it’s their first gig, a stepping stone to a better job. Or,…
My entire childhood revolved around the old victorian on the bluff above the ocean. Easter egg hunts are one of my lasting memories – the yard was huge, with hedges dividing areas of focus. The large vase in my favorite nook was made by Uncle Charlie. Ceramic glazed, a bit lumpy, crooked, and very large…
How do you decide what means the most for your loved one when they can’t tell you? Like the bursting of an aneurism, a health emergency or disabling event comes when you least expect it. My Mom somehow had the ability to call 911 before her seizure started. When I arrived hours later to pick…
Some conditions have a predictable healing pattern. Autism is not one of them. There are plenty of life-long conditions that can affect people their entire lives – Downs Syndrome, Spina Bifida, CF, and many more – but I am here today to talk about Autism. Or as we sometimes call it Autism Plus. Our son did…
They are everyday nuisances..the phone calls to try and get through the maze we call the health care system and government entities. Today it was the straw that broke the camel’s back. Just a drop in the bucket of life really. The call had to be made to the pharmacy because the refill wasn’t filled…
